Tuesday, September 11, 2007

Pacing, Power Chair, Jouse and the CUBS

Pacing is good for the most part. Sunday was the best with 2.5 hours in the chair. We can get that long of a time first thing in the morning, in bed and doing nothing , but it dwindles fast during the day. We continue to chart if he has been deep suctioned or if we used the Inexsuffalator AKA "the coughilator". It is a machine that shoves pressure into the lungs, expands them, and sucks it back out, (like a cough) hopefully getting the bigger mucus or "luggies" deep down cleared out.
YOU WANTED TO KNOW THAT RIGHT?

This morning Dan even got washed up, dressed and into his chair during pacing. Transferring him without tubes was nice. This was a first, as any movement or touching of him in the morning causes lots of spasms and would affect the pacing. It also knocks his SpO2 levels down below 94, which is where the headaches begin. Dan's is usually at 99 or 100. So, progress at a steady pace.

His power chair is possibly going to be delivered to the Rehabilitation Institute of Chicago this week. The wheel chair company requires that an occupational therapist check him out with the new device. I sense another 1 day road trip in the works, but am getting better at packing all his travel stuff.

The Jouse mouse showed up today. [We're feeling a little gypped because we paid for 2nd day air from Canada, and it took 13 days. Such is life.] Anyway, we got it hooked up and Dan is perusing the Internet with a bit more speed. Thanks to the ones who provided the funds for this device.

What is with those CUBS? Yes, we watch every game, every day. We now have a 2nd CUBS banner hanging up, and CUBS necklace, [thank you Sharon at Party Setters], watch with the CUBS blanket, and CUBS cap on. We even get vocal [but not like Uncle D.] at the TV when plays are blown, knowing that we could have done better. LOL I don't think it's something to pray about because the Brewer fans are praying for the opposite way. [Sorry to Uncle E. Aunt L. S&T, but we feel the Cardinals are too far out of it for a comeback this year.] If you want great insight to the game and players, stop by and join us.

11 comments:

Anonymous said...

But we here in Cleveland are cheering the Indains on!!! Sorry, but we think it's final our time. Still praying and happy pacing is doing well...in Northern Ohio.

Sweetness said...

Dan:

Sorry it's been awhile since I checked up on you - as you can imagine, it has been CRAZY here at the 'Ville. But things are beginning to "settle in" to a regular schedule.....kind of. Of course Kernel and the OPE guys can keep things exciting and find ways to fill my schedule!!!

See you at the OPE Reunion?

Love you, bro.....

Kati Carter said...

Go Cardinals!!!!

Kati Carter said...

Don't know if you guys are still looking for land, but I think there's land for sale off Spring St. in South Elgin, east of McClean St. Just wanted to let you know.

Anonymous said...

Is it true that the Cards are really too far out? If that is true, that may be the best news of the day. I am on the edge of my seat everyday with our Cubbies, but mostly I am banging my head and yelling at the tv:)

I do like that Debbie and I can have "intelligent" conversations at school about our cubbies...but none of the other teachers seem to be as fired up..we have to fix that, don't we Deb? :)

Jane-Jane said...

sounds like things are moving along up there in Chi town! Praise God!!!

And Dan, what have you been eating lately??? How's the weight coming along?

Anonymous said...

go cubs!
hope you have a good day today, Dan...
wammer

Anonymous said...

Watching the Cubs is like watching Lucy with Charlie Brown's football...
love y'all

Anonymous said...

Hooray for your power chair hopefully coming soon and the increased pacing! Praise God!
Go Padres! :-)

Your big sister said...

Oooh, yay new pictures on the sides! I don't want to give it away so I won't tell which one's which, but I know, I know!!
That Cubs "family" picture makes we SO excited for Sunday - 10 Knudsen/Krakers together finally!!!!
PS - we're having a day at work where we can wear our favorite team jersey - Mom can I borrow yours?? :-D

Anonymous said...

Sorry for the inconvenience with the delivery of the mouse! I feel your frustration. I work for a business that sells UPS services. If UPS was the culprit in not delivering your mouse when promised, you are owed a REFUND for shipping costs! That's the UPS guarantee. I encourage you to submit your receipt for that well-deserved reimbursement!

A sister in Christ and
looking out for YOU!