Saturday, June 7, 2008

6 months of Pacing with the DPS

Hey Hey, Dan has been pacing with his
Synapse - Diaphragm Pacing Stimulation (DPS)
for 6 months non stop.
AND the CUBS are in first place again. Life is good for Dan.

Dan and all of us who care for him can never say enough good things about the freedom and better quality of life without those dreaded ventilator tubes. Thanks Dr. Onders for not giving up on this "experimental device".

Ben, a college buddy, sets up Dan's Jouse for his computer

Mike came home Tuesday from Kennedy Krieger Institute KKI, even brought some photos back, but his photo card disappeared. It might have something to do with the fact that we are in the midst of packing up AGAIN for another move at the end of the month.

Deb is headed out to KKI Saturday 7th, to be with Dan for the next 10 days. She is not used to being in strange surroundings by herself. We recently got accepted into Ronald McD0nald of Baltimore housing. Is only $15 a day, [a fraction of what we were paying] and includes a dinner meal. God always provides for us.

Psalm 36:7

How precious is your unfailing love, O God!All humanity finds shelter in the shadow of your wings.

Dan continues to do well with his new therapies, and each day brings new challenges, such as putting him on his stomach. Sound easy, but it involves seldom used movements, and his breathing is a bit more difficult. BUT the benefits of a back massage or chiropractic treatment, or a back rub, etc. is priceless for a quad.

Dan has regularly been able to be on the "cycling machine", for a full half hour and not run out of energy. He now has a 3rd pacer, set at 18 breaths per minute [BPM] to help with the increased need for air and oxygen. It's just like you and I doing a run, or cycle ride.
Get your heart rate going folks.

His doctor called on Friday, explaining that Dan was on an IV medication drip, as he has another UTI. We are going to try another vitamin on him, more citrus and lots of water. Pray that this clears up.

^Messing around with Steve, another college buddy & honory member of our family. Gotta love the pizza box behind Dan.

Easter '06 - Steve colors easter eggs for the first time in his life [not a Trinidad tradition], and everyone gets beat by Grandma K in a game of Chinese Checkers.


Papá to the best 2 said...

Cool, didn't know about the Ronald McDonald house. But "includes a dinner meal"??? Hope you don't mind big mac's for a week. ;-).

Anonymous said...

GO Cubbies and go Dan!
They are really working you!
Will be praying for the UTI.

Keep up the hard work.
Tell us more about the place. Have you met any guys w/SCI? Are the nurses nice? Good food or do you order pizza allot? Are yoy homesick or no time for that? Sleeping better?
Connie Lukacs

Anonymous said...

Go Dan!! Go Deb!! Still praying.

Beth Bolander