Wednesday, October 10, 2007

Pacing record

We were greatly blessed by all the Cedarville family who encouraged us this weekend by letting us know how often they check in on Dan. Staff who never even met Dan have closely followed Dan's progress. And we have so many parents of Cedarville students who pray for us -- people we don't know and may never meet this side of heaven. We are incredibly thankful for our CU family.

Dan came home from a fun weekend and started a new pacing marathon. He just completed 48 hours of non-stop pacing, but his pacing is still only when he is in bed or reclining in his chair. And he doesn't feel like he has enough air to cap off his trach yet, so he does not have voice while pacing. We hate the tubes, but we also hate not hearing his voice. When he goes back on the vent for a few minutes, it's great to hear him talk.

Dan has his first doctors appointment, with a spinal cord doctor, this Thursday . Pray for wisdom on the doctor's part -- that he would have understanding of Dan's issues -- especially some pain he continues to have.

7 comments:

Papá to the best 2 said...

I'll be praying for the appointment. See you tomorrow to see what happens with the new Dunder Mifflin website. :-)

Jane-Jane said...

48 hours...dude, that is WAY cool! I'm praying today for your doctor's appointment. Hope you are rested from all the activities this past weekend. Jane

elj377 said...

Praying for wisdom for the new doctor! Wow! I am impressed with all the hard pacing you are doing! You all have been in our prayers extra lately and I hope that God has made things a real blessing for you!

debra sirek said...

Dan, you are in my thoughts and prayers EVERY day.

From Debra Sirek.. friend of the BEAUTIFUL Mrs Pat Johnson

PS...to Debbie,
I had sent you an email a month or so ago offering my house cleaning services to you. The offer is still open if you need a break..no charge.. just send me a message
debra@wholesalelife.com

Amanda Martin said...

Wow so much has happened the last few days! Sounds like ya'll had a great time at Cedarville. Will be praying for the appointment and for the pain that dan is having and for this pacing marathon....way to go, Dan! Keep up the great work!

Many thoughts,
Amanda

Sophia said...

Just checking in on ya from Taipei, Taiwan! We are heading to Hong Kong tomorrow and we will be there for two weeks.

Sounds like you had a great weekend. Keep up the awesome job with the pacing. Lots of thoughts and prayers as you head to the doctor.

take care,

Sophs

Your big sister said...

Dan's voice is great, but it's nothing like that shaking his head with the "you're so weird" look on his face. Classic!