Well, we are not keeping track of EVERY new record that Dan sets, but this was a good pacing week. Dan paced non-stop from Tuesday till Saturday.
Mind you he was also not out of his chair much, but pacing continues to be good, AND he is able to speak by using his Passy Muir Valve [a special cap] many times during the day. This is a result of going with a new "cuffless" trach the other week.
So, while a few weeks ago he could barely get in the chair without immediately going on the vent, he now transfers with no tubes, [so much easier for all], making a few adjustments like put feet up and a chair tilted back to prevent him from blacking out, and thus the pacing continues.
Today he was also speaking for some time in his chair while pacing. We hope to be downsizing his Shiley #8 trach soon to a Shiley #6. This should decrease the amount of blockage the trach causes in the air ways.
Good progress by Dan. God is Good
Mind you he was also not out of his chair much, but pacing continues to be good, AND he is able to speak by using his Passy Muir Valve [a special cap] many times during the day. This is a result of going with a new "cuffless" trach the other week.
So, while a few weeks ago he could barely get in the chair without immediately going on the vent, he now transfers with no tubes, [so much easier for all], making a few adjustments like put feet up and a chair tilted back to prevent him from blacking out, and thus the pacing continues.
Today he was also speaking for some time in his chair while pacing. We hope to be downsizing his Shiley #8 trach soon to a Shiley #6. This should decrease the amount of blockage the trach causes in the air ways.
Good progress by Dan. God is Good
9 comments:
the valve....love the name! did they name it after our family? Muir is our last name....thought that was a funny coincidence! Now every time you think of the passy-muir valve, you can think of all the prayers I have, and will continue to send up for you guys!
Have a great week!
Praying Jane
Thanks for the updates. We continue to pray for progress. God is in control and working in and through Dan. Keep the Faith! The Basiles in Puebla
Glad to hear things are going well Dan. Where is your new place of residence? I'll have to stop by again.
keep up the good work, man!
wammer
Hello check in on dan crew...
I so wish I could be part of the "helps" team for your family but the commute from tampa might be a bit much. Praying that God continues to put Lots of servants in your midst that notice the little things...
Great progress, Dan. Keep up the good work, buddy!! All for Jesus!
We love you and "pray all the days for you"!
Reagan (who is going out dressed as...Army man for year #3 and wanted this to be typed on here for you to be sure to see...)
Way to go Dan! It's awesome to hear of your new pacing record, perhaps you deserve a medal or something! ;)
Keep going strong, you are prayed for by many!
Oops...forgot to add this, which is the reason I was going to leave a comment. I ran across this today, and wanted to pass on the reminder of where our focus is to be and where our help comes from:
"But we have this treasure in jars of clay to show that this all-surpassing power is from God and not from us. We are hard presssed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down, but not destroyed....Therefore we do not lose heart. Though outwardly we are wasting away, yet inwardly we are being renewed day by day. For our light and momentary troubles are achieving for us an eternal glory that far outweighs them all. So we fix our eyes not on what is seen, but on what is unseen. For what is seen is temporary, but what is unseen is eternal." 2 Cor 4:16-17
Post a Comment